MND Association, Cornwall Branch
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News from 2016-2017


MND Christmas Carol Service

By Emma Bungay

On Tuesday 5th December 2017, we gathered with friends, family, people living with MND, and supporters for our Christmas carol service at Truro Cathedral, a celebration which takes place every two years.

St Ives Community Choir
christmas carol service


It was a wonderful service led by Canon Simon Griffiths, with readings by Regional Care Development Advisor Kerry Palmer, Branch President Derek Williamson and Association Visitor Karen. The congregation took part in singing a variety of Christmas carols, and messages of love and remembrance were tied to baubles and hung on the tree whilst St Ives Community Choir performed Silent Night for us.


St Ives Community choir performed an array of Christmas songs and carols for us, interspersed by the aforementioned readings by Kerry and a few of our committee members. We ended the afternoon with tea and cake, and offered season’s greetings to one another.


We are pleased to announce that £202.13 was raised at the carol service, with a further £143.50 raised from the sale of MND merchandise.


We would like to thank St Ives Community Choir for accepting our invite to perform at the Cathedral; Canon Simon Griffiths for leading the service, and Derek, Karen and Kerry for doing readings.


St Ives Community Choir article about the event -


Credit for the photograph of St Ives Community choir goes to Bill, on behalf of the choir.


The Chapel on the Hill Cheque Presentation

Christine Bungay

On Sunday 19th November, David Maloret and I were invited to collect a cheque from the Chapel on the hill in Porthtowan. The wonderful sum of £850.00 was raised by congregation collections and other church groups invited to their 'songs of praise' services in June, July and September.

Capel Presentation
Dominic Rapsey

Derek Williamson, Branch President, attended the September evening to receive a cheque for £50.00 and give a short talk on Motor Neurone Disease.


Dominic Rapsey, who presented us with the cheque for £850, raised a further £310 by taking part in the “Silence Speaks” challenge, along with his friend Robert Richards.


The Chapel on the hill, and indeed the Chapel’s steward John Bache, gave us such a warm welcome. Dominic was quite at home there as his Gran Joan Trewerne was playing the organ and the hall was built by his Papa Douglas Trewerne. Douglas is living with MND and is so proud of his Grandson's fundraising.


The branch would like to thank the Chapel on the hill and Dominic and his friend Robert for raising monies for MND. All monies raised will be staying in Cornwall to benefit people living with MND in Cornwall.


Silence Speaks

Thanks go to Trewirgie Junior School, the original article appeared in the 7th July Newsletter

Dominic has now completed his Silence Speaks day and we can confirm that he managed to raise a magnificent £310 in total.


Dominic of 5V is going to be raising money for MNDA by doing a sponsored silence for a day. He will be wearing a sign around his neck to make sure that everybody understands why he is not talking to anybody. This is Dominic’s MND speech that he read out in assembly.


“In July 2015 my big, strong Papa was diagnosed with this terrible disease. He was given months to live but he is still fighting this disease 2 years later. My Papa used to drive tractors, diggers, lorries and build houses but now he is in a wheel-chair all the time. He uses a machine to help him breath as his lungs are a muscle and they are weakening but he still manages to chat to me and all of his grand children. He can’t use his arms very well so we help him as much as possible”.


If you were moved by the assembly talk given by Dominic or know someone who would benefit from the money raised by the MNDA then please would you give generously to this cause by following the link below and help support Dominic in reaching his target. Thank you everyone.


Derek Williamson

Certificate of Recognition

By Emma Bungay

On Thursday 16th November 2017 at our monthly branch meeting, Branch President Derek Williamson was presented with a certificate of recognition for over 10 years’ volunteer work for the Cornwall Branch.


The certificate was presented to Derek by the CEO of the MND Association, Sally Light, who thanked Derek on facilitating over £100,000 in fundraising monies to be raised over numerous golf day events, both in Cornwall and in Spain.


The committee would like to congratulate Derek on his fantastic achievement and to thank him for all of his hard work, which we are sure is not set to end quite yet!

Quiz night at Mount Ambrose Cricket Club

By Emma Bungay
Pub Quiz 2017
L to R: Mike Cardew, Helen Snell, Cllr Mark Kaczmarek, Julie Cardew, Jackie Gainey and Stephen Gainey.

On 20th October 2017, 20 teams of four people gathered to take part in a quiz at Mount Ambrose Cricket Club. The quiz night, organised by Helen Snell, was based on knowledge of Cornwall and the Isles of Scilly, and featured Cornish Tin Miner and Cornwall Councillor Mark Kaczmarek as the Quizmaster. The quiz comprised of two picture rounds, an anagram round and a larger, general knowledge question-based round. The evening was punctuated with a pasty break, raffle draw and auction.


The evening went well and everyone had fun. The winners of the quiz were Sister Act, who won a voucher for food and drink worth £40 kindly donated by Rose Cottage, Redruth. Donations for prizes and raffles, amongst many were from LWC Drinks Ltd., Amity Indian Restaurant, Keltek Brewery, Mount Ambrose Inn, Duane AJ (a local vocalist), Trickies and Treleigh Arms.


The branch would like to thank Helen Snell and Cllr Mark Kaczmarek the Quizmaster for an excellent evening, which raised £665 for Motor Neurone Disease. All monies raised will stay in Cornwall.


The Pavilion is available to hire for such events as this and other functions (see their website for details - ).


October Open Meeting

By Emma Bungay

On Thursday 19th October 2017, a wet and blustery day, the Cornwall Branch held their annual October open meeting at Carnon Inn. There was a turn out of over 30 people and an extensive raffle which brought in a total amount of £83, with an extra £108 raised from the sale of Christmas cards.



Chairman David Maloret welcomed the supporters and reminded them of the Christmas carol concert taking place on Tuesday 5th December at Truro Cathedral. Branch president, Derek Williamson, said a few words about the fundraising events which have happened since the AGM in April, and spoke about the upcoming Golf Day at Lanhydrock Golf Club. It takes place on Friday 11th May 2018 and it will be the 10th annual Bodmin Rotary Club golf day in aid of Motor Neurone Disease. Derek urged golfers to get their teams booked early as places are already filling up.


The evening was a success, with Anne Parkes and her friend Christine Jones singing some beautiful songs, such as I’ve never been in love before and Down by the Riverside, along with more upbeat numbers such as Lambeth Walk and I’ve got a lovely bunch of coconuts, which the audience participated in. Pasties and home-made cakes were then available for everyone whilst they caught up with friends and acquaintances.


Roche Cheque


Roche and District Young Farmers Club presented the branch with a cheque for £4,000 which was brought to the meeting by one of our committee members. The Farmers Club chose the MND Association as their charity of the year and the money was a result of various fundraising endeavours.


The branch would like to thank everyone who attended our open meeting. We would also like to thank everyone who has raised money for the branch throughout this last year. It has all been greatly appreciated.


We welcome you to the next open meeting on Thursday 19th April 2018 at Carnon Inn.




Lifton Self Preservation Society Cheque Presentation

By Emma Bungay
Cheque presentation

On Thursday 28th September, the Lifton Self Preservation Society presented the Cornwall Branch with a cheque for £8,235 which was raised from their gig rowing efforts at the Great River Race in London on Saturday 9th September 2017.


Over 40 people attended the cheque presentation held at the Arundell Arms in Lifton. The Society presented Branch President Derek Williamson with the cheque. Derek thanked the Lifton gig rowers sincerely for their fundraising efforts and spoke about their next venture, which is set to take place in 2019. Watch this space…


The Cornwall Branch would like to thank everyone who took part in the gig rowing, from the sponsors, to the families of the rowers, and the rowers themselves. The money raised will be kept in Cornwall for people in Cornwall living with MND.



Lifton Self Preservation Society compete in the Great River Race 2017

By Emma Bungay

On Saturday 9th September 2017, Lifton Self Preservation Society took part in the Great River Race, rowing a Cornish Pilot Gig 21.6 miles up the Thames in aid of Motor Neurone Disease.


Their passion for raising money for, and awareness of, Motor Neurone Disease is as a result of seeing their friend, Jeremy Durrant, live with the disease. Sadly, Jeremy lost his fight to MND in November of last year, just two months after congratulating the Lifton Bikers on their fantastic fundraising efforts at Land’s End. See the full report here



St Ives Community Choir Fundraising Cheque Presentation

"Emma Bungay, the local MND representative, came to the choir practice on Tuesday 8th August, to be presented with a cheque for £1100.00, the final total for the fund raising done for this worthy cause. Emma informed us that she also sings in a choir and appreciates the effort and quality that was evident when she attended our recent concert." Article taken from St Ives Community Choir website


St Ives Community Choir


Sticker Country Fayre and Vintage Rally 2017

By Emma Bungay

On 22nd and 23rd July 2017, the annual Sticker Country Fayre and Vintage Rally took place at Sticker AFC. The entrance fee was split between three charities; Merlin MS Centre, Children’s Hospice South West and the Cornwall Branch of the Motor Neurone Disease Association. We held an extensive tombola with over 1,000 prizes to be won, and baked delicious cakes to be sold off per slice. Here is a selection of photographs from this year’s event.


(Click to enlarge)

The Cornwall Branch would like to express their thanks to all who attended and helped to raise money for three very worthwhile causes. The total amount is yet to be confirmed, and a cheque presentation will take place in due course.


‘With a Song’ Summer Charity Concert

By Emma Bungay

On Tuesday 18th July, Carbis Bay Wesley Methodist Church was the venue for the St Ives Community Choir's Summer Charity Concert in aid of Motor Neurone Disease. The event, which was compered by BBC Radio Cornwall presenter Donna Birrell, was a resounding success and raised over £800 for the MND Association.

Choir event

The choir performed such songs as Let Music Live, Rock-a-my-soul and My Fair Lady to the packed-out audience whilst a trio of young musicians interspersed with their versions of popular pieces. Magdelene Berg and Paul Couch played the flute and Rebekah Couch played the clarinet. They performed a variety of pieces that the audience thoroughly enjoyed.


The evening was punctuated with a grand prize draw, at which point members of the audience won a variety of fantastic prizes which were all generously donated by local businesses including Isles of Scilly Steamship Co., St Ives Harbour Hotel and Prime Time Boat Trips.


After the interval, young performer Sonny Donaldson played his rendition of Cantaloupe Island on the saxophone. Musical Director William Thomas then temporarily left the role of conductor to perform traditional Zulu song Ukuthula with the choir. This was an astounding piece that raised the roof and delighted everyone, from the singers in the choir to the audience gladly watching.


Donna Birrell was very pleased to announce that £837 had been raised for the MND Association, with a further £105 donated after the choir performed an impromptu concert at Fore Street Methodist Church prior to this event. With further donations from the choir the running total is in excess of £1,000 from these events.


The Cornwall Branch would like to thank everyone involved in this event for raising money and awareness for Motor Neurone Disease.


To find out more about the choir, visit their website -


Fundraising Cream Tea at Feock

By Emma Bungay

On Saturday 8th July, a dry and sunny day, Jackie and Terry Dunstan opened their home at Penpol Creek to the public for a fundraising cream tea in aid of Motor Neurone Disease. The event was organised by Jayne Jenking and Jackie Dunstan with Vicky Vinnell, Jo Pope and Sue Webster. The Cornwall Branch would like to thank Jackie, Terry and everyone involved on their fantastic fundraising efforts. Download the full report here.


JustGiving page -

JustGiving fundraising via text – HWMM77 £5 to 70070


Here are some pictures of the team handing out fliers before the event and more from the day...



Over 100 attend the Brian Pascoe memorial tractor run

Tractor Run

Nearly 60 tractors lined up at Coverack Bridges on Friday 23rd June to take part in an annual tractor road run, and nearly all of them made it to the finish line. Falmouth Packet article here


Around 150 people took part in the charity run, either driving a tractor, sitting in a trailer, or in a convoy en route to Porthleven harbour.


The Brian Pascoe Memorial Mid-Summer Charity Tractor Road Run was organised by Bob Eustis, and is organised to raise money for the Motor Neurone Disease Association.


In total £700 was raised for the worthy cause, and plans are already being drawn up for the next event.



Bodmin Rotary Golf Day raises £6,500 for MND

By Emma Bungay

On 5th May, a very blustery day, the Rotary Club of Bodmin and Derek Williamson, President of the Cornwall Branch of the Motor Neurone Disease Association, held one of the largest charity golf events to take place at Lanhydrock. 46 teams of 4 took to the course at Lanhydrock Hotel and Golf Course and played in a texas scramble format to compete for fantastic prizes to raise money in aid of MND.


Derek has been driven to raise money for Motor Neurone Disease since losing his son and first wife to MND back in 2007. He unfortunately also lost his sister-in-law to the disease 20 years prior to this. Since 2008, over £100,000 has been raised for Motor Neurone Disease.


Peter Williams, President of Bodmin Rotary Club, opened the golf day at 7.30am. Derek Williamson, Graham Bond, owner of Lanhydrock Hotel, Peter Bray and Allan Foad were all in attendance at the beginning of the golf day.


The golf day was a great success, with teams enjoying a delicious lunch after completing the 4.5 mile course. After completing all 18 holes, golfers were given the option to take part in a challenge on the 19th hole to raise extra money for MND. The challenge was to get closest to the pin in one swing. Olivia Trewhela from Pam’s People was the closest to the pin and she won a large hamper filled with delicious Cornish fare.


The extensive raffle was organised and drawn by helpers and members of the Cornwall Branch of the Motor Neurone Disease Association. The raffle raised a total of £1,080 before being match-funded by Barclays.



A presentation was held in the evening, and golfers waited to see who won the various, high quality prizes. Peter Williams, President of Bodmin Rotary gave a speech, thanking everyone for their participation and support; and Derek Williamson thanked everyone for attending and for raising so much money in aid of this “dreadful disease”. He then handed over to Scott Mann, who presented the winners with their prizes. Winners were as follows:-

  • Straightest drive – Sue Offield
  • Gents nearest the pin on the 11th – John Farrel
  • Ladies nearest the pin on the 15th – Lou McCartney
  • Mixed second – The Game Birds
  • Mixed first – The Fantastic Four
  • Ladies second –The Rockettes
  • Ladies first – H.E.A.L
  • Gents second – Lloyds Bank
  • Gents first – Odd One Out
  • Overall first place winner – Dave Nottle Scaffolding (with an overall score of 54.4)

Over £6,500 was raised for the Motor Neurone Disease Association. The Cornwall Branch of the MND Association would like to thank everyone who took part, especially Graham and Clare Bond, the owners of Lanhydrock Hotel and Golf Course, for their hospitality. We would also like to thank Bodmin Rotary Club for organising and running the golf event. Further thanks go to everyone who contributed to the raffle, and everyone who sponsored a tee or green.


Thank you to everyone who contributed to the raffle. This includes, but is not limited to, the following:

  • Clippy’s Haircutting Co
  • Kelly’s of Cornwall
  • Cornwall Hotel
  • Bodmin Specsavers
  • Trago Mills
  • Viraj Indian Cuisine
  • Bodmin and Wenford Railway
  • JD Wetherspoon in Bodmin
  • Trago Mills
  • PFA Professional
  • The Sanctuary


Sally’s 40th Birthday and Charity Night

By Emma Bungay


On Friday 28th April 2017, Sally and Richard Woods held a music, comedy and auction night in aid of Motor Neurone Disease at the Old Cattle Market in Helston. Friends, family and fellow fundraisers joined the Woods family on their fundraising night and contributed to the astounding grand total of £6,213.77.


Sally sadly lost her dad, Roger Johns, to the progressive neurodegenerative disease in March 2016 and wanted to mark her 40th birthday this year by celebrating his life with friends and family, and raising funds and awareness for the Cornwall Branch of the Motor Neurone Disease Association.



The event was a resounding success, with 200 people attending and two fantastic musical acts taking to the stage: Skyliner, 14 piece ensemble covering classic tunes from the past; and Cover Up, a band who gave their own twist on songs made famous by other artists. Johnny Cowling was the main event, performing a range of songs and funny anecdotes and calling the auction (for full list, see below).


The night was filled with fun and frivolity, with guests queuing to have silly pictures taken at Handsome Momento’s photo booth, and enjoying a drink from Off Beats, the mobile bar of the evening. After Johnny Cowling’s set, pasties from Helston’s Horse and Jockey were handed around. Everyone who attended the event thoroughly enjoyed themselves and people left whispering of a repeat event next year.


Auction prizes –

  • 7 night holiday at Penwarne Manor

  • John Fowler 7 night stay in a Platinum static caravan

  • 7ft x 5ft Popular Regency Summerhouse donated by Elite Spas and Leisure (SW) Ltd

  • 20” Frame Muddy Fox BMX Bike from All-Pac Packaging Supplies

  • Discover Scuba for 2 donated by Learn to Dive

  • England Rugby Shirt signed by Jack Nowell donated by Gripsure

  • Signed Exeter Chief Rugby Shirt donated by Gripsure

  • Signed Rugby Football Club Shirt from Redruth Rugby Club

  • Bouncy Castle Hire for a day donated by Cornish Limousine and Bouncy Castle Hire

  • Inflatable Boxing Ring Hire donated by Cornish Limousine and Bouncy Castle Hire

  • Cornish Sea Salt and Warrens Bakery Hamper

  • Handcrafted exclusive ring from Silver Designs by Tamsin Williams

  • One Night’s Accommodation and a Two Course Evening Meal for Two at the Mounts Bay Inn

  • 1 hour’s foot treatment from Sole Balance

Other sponsors of the event include The Cornwall Channel, who generously offered sponsor the video production and editing on the night; Phoneta, who funded the pasties for all 200 guests; and the Cornwall Branch of the Motor Neurone Disease Association who sponsored the 49-seater bus for friends and family to make it to the event.


The Cornwall Branch would like to thank Sally, Richard, and everyone involved in the event, for their determined generosity and enthusiasm. All funds raised by this event will be used specifically to provide support for people in Cornwall living with MND and their families, as requested by Sally and Richard.



Vincent Tractors

By Cathey Aitkenhead



2016 was the 50th Anniversary of Vincent Tractors. As MND was very close to their hearts, they decided to set about fundraising for the Cornwall Branch. The majority of fundraising was done at last year's Royal Cornwall Show where they had a hog roast. The sum at the end of the year reached £1,000 which was kindly doubled to £2,000 by Mr Paul Vincent. On Thursday 20th April, a cheque presentation was held and the branch was given the cheque for £2,000.


Mr Hodge has requested that the donation is used for equipment for people of Cornwall living with the disease.


The Cornwall Branch would like to thank Mr Hodge, Mr Vincent and everyone involved in these events, for their tireless fundraising efforts.


Disco at Trethorne Leisure

By Emma Bungay

On Saturday 8th April 2017, Helen Ingmire and Caroline Jenkin organised a charity disco and buffet at Trethorne Leisure, Launceston. The ticketed event was organised in aid of the Motor Neurone Disease Association and the UK Stem Cell Foundation, both of which are close to Helen and Caroline’s hearts.
The event was attended by over 150 people, all of whom enjoyed a delicious buffet, disco and raffle with high quality prizes. Local businesses were very generous in donating various gifts for the grand prize draw, and there were a lot of happy winners.


After the raffle draw, DJ Boombastic played everyone’s favourite songs until the early hours whilst Paparazzi Parrish, the official photographers of the event, worked their way around the room capturing memories. The whole event was a great success and raised over £1,500 for each charity.


The Cornwall Branch would like to thank Helen and Caroline for their fantastic fundraising efforts.


(Click to enlarge)

Support Group Lunch at Porth Veor Manor

Words by Cathey Aitkenhead


The annual Spring Supporters’ lunch for the Cornwall branch of the Motor Neurone Disease Association was held on Monday 20th March at the Porth Veor Manor Hotel. We had a turnout of over 35 people and the lunch was thoroughly enjoyed by all who attended.


Christine Bungay, one of our Association Visitors, had created a display board of our past events. It received much interest and was a lovely backdrop for the raffle that raised £154.00. Further sales of merchandise and cakes provided by Association Visitor Karen Christophers, raised the amount further to £206.00



Derek Williamson, committee member and fundraiser, gave thanks for the hospitality shown by the hotel and its owner Mr Jeff Smith, a long standing supporter of the charity. Mr Smith donated to the raffle a dinner for two, as well as an offer to auction a two night stay which raised a further £130.


Derek also gave a brief overview of future events which include the Branch's AGM on Thursday 20th April, the Golf Day on 5th May and the Lifton Bikers’ next adventure. For news on our upcoming events, please visit our forthcoming events page.


The branch continues to raise funds at events such as this to support people in the county with this disease and to one day create "A World Free From MND".


We would like to thank everyone who attended the support group lunch and invite you to keep your eyes open for the next one, to be held at Lanhydrock Hotel.


Cornwall Motor Cross Event

By Emma Bungay


On Saturday 2nd October 2016, a Motor Cross event was held at Fraddon Moto Park helping to raise money for, and awareness of, Motor Neurone Disease. The Moto Park donated the track for the day, bikers were charged a standard entrance fee and competitions were held in various categories. There was also a raffle held on the day, which alone raised £1,800.


Alan Jenkins has been a member of Cornwall Motor Cross Club for over 30 years and, having been diagnosed with MND, he wanted to organise an event to raise money for the local branch.


Motor Cross  Motor Cross


The event was a resounding success and on Friday 28th October a cheque presentation was held at Redruth Rugby Club. David Maloret, Cornwall MND Chair and Christine Bungay, Association Visitor, received the cheque for £5,604.08. David explained to the attendees of the presentation what Motor Neurone Disease is, and thanked the bikers for their outstanding fundraising effort.


The branch would like to thank Cornwall Motor Cross Club, Pendennis and Camborne Motor Cross Clubs and everyone involved in the Charity Motor Cross event.


For more information on Cornwall Motor Cross Club, please visit their website



Hilary and Branch

Thank you Hilary

By Emma Bungay


Hilary Rogers, Branch Treasurer for the last 6 years, will be stepping down at the end of January.


We would like to thank Hilary for her hard work and dedication over the years and we wish her all the best for the future.


Hilary was presented with flowers and a certificate of recognition by Jo Campbell, Volunteering Development Co-ordinator for the South West and Thames Valley, at the January committee meeting on Thursday 19th January 2017.



St Day Line Dance class raise money for MND

By Emma Bungay
Terry Prisk Line Dance Class


Terry Prisk runs the Line Dance class at St Day. They work hard to raise money for local charities. We are very fortunate to be one of these such charities.


In November 2016, Roy Keverne, branch President, and his wife Peggy, Founder Member of the branch, were presented with a cheque for £200 from St Day Line Dance class.


The branch would like to thank everyone involved in raising money for our branch.


Parliamentary Reception - October 2016


Hilary Rogers, Treasurer of the Cornwall Branch of the Motor Neurone Disease Association was invited as a guest at a reception which heard from author Dr Jane Hawking. The first wife of Professor Stephen Hawking, Jane wrote the book behind the Oscar-winning film The Theory of Everything and remains an ardent campaigner for people affected by motor neurone disease (MND). Details here.


Lifton Bikers Raise Money for MND - September 2016


In September 2016, a group of 8 men from Lifton put into use their eighteen months of training and set off on their John O’Groats to Land’s End cycle ride for MND. Full details here




Mary Frost

Award for long service

By Emma Bungay


We would like to celebrate the long service of Mary Frost, Association Visitor and AV Coordinator who has recently retired after 17 years of service.


At a recent AV meeting, Mary was presented with a Certificate of Recognition, flowers and a gift for all her hard work over the years.


Mary Frost pictured with Kerry Palmer, Regional Care Development Manager for the South West.





Open Meeting

By Emma Bungay


On Thursday 20th October 2016 at 7.30, we held our second open meeting of the year. Chairman David Maloret thanked everyone for attending and handed over to Roy Keverne, who introduced David Chapman, our entertainment for the evening. David is a wildlife photographer, who gave an animated talk on wildlife, with the use of photography and his knitted body warmer... pictures of which are below.


Luke, one of the Lifton Bikers then took to the stand to talk about their John O’Groats to Land’s End cycle ride at the beginning of September, and to tell us of the total amount raised, which we are very pleased to inform you is over £31,000. Further information on this event can be found in the Recent News page of the website shortly.


Mary's Present
Mary Frost's present

Roy, the Principal of the Cornwall branch, presented Mary Frost, our long-serving Branch Contact and Association Visitor, with an original Lesley Roberts painting to thank her for her years of service to the branch. Mary will be stepping down from her roles, and Roy thanked her for her devotion, time and duty to the branch over the last 17 years. Mary thanked her husband Bryan for supporting her in her volunteer work. The committee would like to thank her very much for everything she has done for the branch over the years.


Jeremy Jackson said a few words about doing a bucket collection for MND next month, which he hopes will raise more money for, and awareness of the disease. Jeremy and his wife Shirley are avid supporters of the branch and do a lot to help the committee in their fundraising. Jeremy also spoke about a book he has written, about his late grandpa who served his country twice in two world wars, surviving a shell blast in France in 1917 and dealing with unexploded bombs as an air raid warden at Perranwell in the Second World War. He will be doing a book-signing at Ponsanooth hall on 12th November and at the Royal British Legion on the Sunday. The book is selling for £5 and proceeds will be going to the Royal British Legion.


At the close of the meeting, pasties were enjoyed by all, courtesy of Rowes Bakery in Redruth, whilst people enjoyed the opportunity to network with others. A raffle was drawn and approximately £120 was raised from the sale of the tickets.


The branch also informed the attendees of three very important fundraising events that have happened recently:

  • The Roche Valley farmers presented Derek Williamson with a cheque for £1,500 following their fundraising efforts.

  • Committee members Cathey and Christine attended the Crantock cheque presentation, at which they were given a cheque for £1,500 (pictures below) from the proceeds of their Bale Push event on Friday 9th September.

  • On Saturday 15th October, Lesley Roberts held a charity music event in memory of her late husband, Christopher Roberts. The event was very well attended and supported, and raised in the region of £3,500.

(Click to enlarge)

The Cornwall Branch would like to thank everyone who attended our open meeting and we warmly welcome you back for the AGM in April (details to follow).



Boscastle Quilt Raffle

Words by Cathey Aitkenhead


Boscastle Quilt

On Tuesday 4th October 2016, a bright sunny day, we attended the raffle draw of the stunning handmade quilt made by the Boscastle quilt group. There was a very well attended coffee morning with some lovely handmade cakes and other goodies.


Some of the craftwork of the Boscastle quilt group was on display, including beautifully made quilts, silk dyed scarves, felted lampshades and pictures, as well as the most exquisite handmade soft toys.


Pride of place was the springtime quilt, displayed in the photo below. The winner of the quilt was Mrs Teresa Wilson’s daughter and son-in-law, who live in Gloucester. It was Mrs Wilson’s late husband who lost his life to Motor Neurone Disease. Mrs Wilson is an active member of the quilters and she played a key part in its production.


The total amount raised is to follow, however it is thought that the raffle has raised over £1,000.


The Cornwall branch would like to thank Jennie Coles and all the ladies of the Boscastle Quilt Group for their support.




The Lifton Bikers

By Emma Bungay


The Lifton Bikers will be cycling from John O’Groats to Land’s End in just 14 days, starting on Friday 9th September and reaching Land’s End on Saturday 23rd September 2016. The Cornwall branch looks forward to meeting Jezza and the Lifton bikers at the end and celebrating their triumph the only way we know how – with Cornish pasties!


The Lifton Bikers have raised an astonishing £20,557 (at the time of this article), with funds increasing daily. Their total has been a combination of fundraising events, including bucket collecting at local supermarkets, cake baking and an evening of rock music.


To read their story and help support the cyclists, visit their JustGiving page



Crantock Bale Push

Words by Cathey Aitkenhead


On Friday 9th September 2016, the great Bale Push took place in Crantock. The Cornwall branch of the MND Association would like to thank Marianne Inskip for putting us forward as one of the charities to benefit from this year’s profits.


(Click to enlarge)

Our charity stall raised £124.20 from sale of Marianne's late husband's book and her delicious chocolate brownies as well as some donations and a game for children to take part in.


We have been informed that there will be a presentation of further monies in October at The Bowgie Inn, details to be confirmed.



MND Support Group Lunch

Words by Cathey Aitkenhead


On Thursday 8th September 2016 we celebrated another Cornwall Branch Supporters Lunch at the Lanhydrock Hotel & Golf Club. A total of 39 people attended, including branch members, people living with MND and their families. We also had a good number of branch friends.


After a superb lunch, Roy Keverne, Branch President gave special thanks to Ba Miller who retired officially from her role as an Association Visitor, having given over 20 years’ voluntary service to the Branch. Ba was presented with a card and gift card from a garden centre.


(Click to enlarge)

A raffle was held, which raised £140.00, and sales of MND merchandise and Christmas Cards raised a further £149.00.


We are thankful to all who came along and to the hotel for making us feel very welcome.


The lunch ran very smoothly and we look forward to the next one! If you were unable to make it on this occasion, please consider joining us next time. The website will be updated with the details in due course.



Summer Charity Concert at Budock Church


On Saturday 2nd July 2016 Stithian’s Ladies Choir performed at Budock Church, with guest artiste Anne Park and her own style of swing and blues. Peter Asplet compered the event, and MND Cornwall’s Peggy Keverne gave a talk on Motor Neurone Disease and the work we carry out as a branch.


The branch would like to extend their thanks to Budock Church for hosting this concert, which raised £834.67, comprising of £507.67 received on the night, £77 from the charity plate and £250 match funding from PCC.



Ice Bucket Challenge in aid of Motor Neurone Disease


Ice Bucket Challenge

On 23rd June 2016, Lesley Roberts encouraged a group of her fellow Weight Watchers members to carry out the Ice Bucket Challenge in aid of Lesley’s late husband Christopher Roberts, who sadly lost his battle to MND last September.


Luckily it was great weather for a soaking. Lesley and four of her bravest Weight Watchers friends poured ice cold water over themselves in order to raise money for, and awareness of, Motor Neurone Disease. To watch a video of the Ice Bucket Challenge, click here


The branch would like to thank Jan Sumpter and her Weight Watchers group in Helston, who have raised £569.80 for MND so far.


We would also like to thank West Briton for covering news of this fundraising event



Ten Tors Challenge

Words by Jeremy Jackson


Jeremy Jackson led his team, which included Chris Buscombe and his wife Pauline, in the Ten Tors challenge on Sunday 15th May 2016. The Bodmin Lions Club did an excellent job in marshalling, hydrating the team with water at the stops and checking them through the checkpoints. The weather was fine with a cool breeze, as near as perfect you could get for a Sunday walk.


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It is thought that the team of three has raised £235. Despite recently recovering from shingles, Jeremy coped okay with the steep inclines and descents, this was his fourth trek across the 13 miles of Tors.

The team would like to thank everyone for their support.

The branch would like to thank Jeremy, Chris and Pauline for their fantastic fundraising efforts.



Lanhydrock Golf Day

By Emma Bungay


On 6th May, Derek Williamson and the Rotary Club of Bodmin held one of the largest charity golf events to take place at Lanhydrock. A total of 46 teams of 4 took to the course at Lanhydrock Hotel and Golf Course and played in a texas scramble format to compete for various prizes to raise money for the Motor Neurone Disease Association. Full report here.


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Golden Wedding Anniversary in aid of MND

Words by Tamsin Roberts


Golden Wedding Anniversary
Douglas and Joan Golden Wedding Anniversary

On the weekend of 26th March 2016, Douglas & Joan Trewern from Redruth celebrated their Golden (50th) Wedding Anniversary which started with an open day on the Saturday at their new bungalow, with refreshments being provided to their 103 friends & relatives. Doug & Joan’s 5 children and some of the grand-children were dressed in tabards and nominated to do the tea making and waitressing, with not a drop spilt. A lot of chat & laughter filled the house throughout the day and a lovely time was had by everyone.


Donation buckets were dotted around and, with anniversary presents being replaced by donations, a total of £711 (to date) was collected for the Cornwall Branch of the MND Association.


The week before, a quiz night was arranged at the Mount Ambrose Cricket Club by a close friend of the family for Doug. A fantastic fun night was had, and a team from MND Cornwall even entered! With a pasty supper & huge raffle with some amazing prizes, a fantastic night was had by everyone and more importantly ALL the money raised was donated to MND Cornwall Branch. The total amount raised at the quiz night was £576.


The branch would like to thank Tamsin Roberts, Douglas and Joan Trewern and everyone who attended their wedding anniversary for their fundraising efforts. For further information on the quiz, please see the next item below...



Quiz night at Mount Ambrose Cricket Club


On 18th March 2016, over 70 people gathered together to take part in a quiz at Mount Ambrose cricket club. The quiz, which was organised by the Events Committee of the Club, chaired by Helen Snell and featured Richard Doidge as the Quizmaster, comprised of eight rounds with a pasty break in the middle. There was a bonus round, where participants had to guess the names of films based on cryptic pictures, or anagrams of the film title.


Participants paid £5 to enter, with the opportunity to take part in a raffle for the chance to win excellent prizes. Helen aimed to raise £500 for MND and when it looked like it might not be possible; people dug their hands deeper into their pockets and donated more, which showed a great sense of community.


The Cornwall branch of the MND submitted a team of five comprised of David Maloret, Cathey Aitkenhead and her husband Mike, Christine Bungay and Emma Bungay. The team thoroughly enjoyed taking part and were pleased that they reached a score of 69 out of 100.


The evening went very smoothly and everyone enjoyed themselves. The Four J’s and the Hatters came joint second place and had to answer a tiebreaker question. The Four J’s answered the question correctly and won a bottle of whiskey. The winners of the quiz, with a score of 75, were MJKS who won a voucher worth £50 kindly donated by Bystro at the Lamb and Flag to spend in their new venture in Alma Place, Redruth. Donations for prizes and raffles, amongst many were from Korner Kutz Hair Salon, Avalon Beauty Salon, Bradfords, SJ Andrew and Jane’s Ironing Services.


When the quiz finished, the Chair of the cricket club Tim Brokenshire thanked everyone for coming and reminded people that the Cricket Club are always looking for volunteers to assist not only in fundraising, but catering, gardening, general maintenance – there is something for everyone! He then handed over to David Maloret, the Chair of the Cornwall branch of the MND, who thanked Helen for organising the event, and Richard for running the quiz. Helen presented the cheque for £576 and David thanked her on behalf of the branch.


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When asked why she was raising for Motor Neurone Disease in particular, Helen explained that last year a family friend and well known person within the Redruth area had been diagnosed with MND which had caused such a dramatic life change not only to them but their loving family, and that she wanted to do a little something to help people living with MND in Cornwall. The family attended with their friends, which hugely added to the success of the event. Not only this, but the Mount Ambrose Cricket Club had, at the end of last year, celebrated their new Community Pavilion being opened and wanted to use the new venue to do something with the Community for the Community. The Pavilion is available to hire for such events as this and other functions (see their website for details -


The branch would like to thank Helen Snell; Richard Doidge, the Quizmaster; and Mount Ambrose Cricket Club Chair Tim Brokenshire for an excellent evening, which raised £576 for Motor Neurone Disease. All of the money raised will stay in Cornwall.



MND Support Group Lunch

By Emma Bungay


On 8th March 2016, an overcast Tuesday, we held our annual support group lunch at Porth Veor Manor in Newquay; a beautiful hotel overlooking Porth Beach. There was a great turnout, with over 60 supporters, fundraisers and people living with MND in attendance.


Attendees enjoyed a pre-lunch drink, in order to catch up with friends and make new acquaintances.


The meals were pre-ordered from the hotel’s extensive menu, for which we have Cathey (our Secretary) to thank for organising. The customer service was really good and, as always, we were very fortunate that they excelled at serving a party of so many.


The Hotel Owner Jeff gave a fantastic prize for the raffle which was actually auctioned off, and brought in an astounding £100. The prize was an overnight stay at the Hotel, including breakfast and evening meal, which was worth £180. There were many raffle prize winners, who were excited to win from our collection of great prizes.


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The total amount raised from the raffle was £230. Angela Williams brought her handmade cards and novelty felt birds to sell, and these went down very well. The sale of Angela's cards brought in an extra £29.81. All of the money raised will go to helping people in Cornwall living with MND.


The lunch ran very smoothly and we look forward to the next one! If you were unable to make it on this occasion, please consider joining us next time. News of upcoming events can be found on our forthcoming events page.